Posted in Family, Jessica & her heart

Jessica’s Tuesday Update

Jessica had another good day of moving forward.  Last night was frustrating with a  roommate  down and depressed about life, wanted to die, and moaned and cried a good portion of the night.  Jessica did not need to hear any of this. I talked to a couple of nurses, and finally one nurse heard her and the woman was moved to a private room.  We now have a newborn baby in the room and so far have not heard a peep from him (probably will at 3 a.m. if he’s a typical baby).

Late morning Jessica got the final two chest tubes out and pacemaker wires.  She still has a medicine port in her one shoulder area, but other than that she is not hooked up to anything.  In the afternoon she went downstairs for a echo and EKG.  I thought I’d hear the results by now, but haven’t.

One of the main things that will hold her up in leaving is her blood thinning levels.  It’s very important to have it at a certain level – not too thin to cause bleeding risks and not too thick to cause it to stick to her mitral valve.  Today it was still too low.   The potential bedsore is slightly worse – just breaking through so please, please pray for her – comfort that she can lay to one side and the strength to walk more.  We just do not want this to get serious.

Another big move is I spoke to the orthopedic surgeon today who came  in late tonight. She was able to look at the x-rays & her neck/spine is worse than we knew.  Besides a hemi-vertebrae in C-7, she has what is called Klippel-Feil Syndrome and for her it means vertebreas 2,3, and 4 grew  and are fused together.  Along with this syndrome it’s very typical to have heart defects. The doc is also ordering a viewing of her kidneys as it can be typical for a missing kidney or an odd-shaped one.  It may not be anything that could cause problems, but we should be aware of it.  I am so praying this is not another problem.  This would be discouraging at this point. We are hoping that they can get her in for an MRI and additional x-rays on her neck/spine tomorrow.  Please pray this can be done, as it would be so much better to have a diagnosis before everything is in the Christmas mode through the whole weekend – and we would not get anywhere.

Heather & Jessica doing a felt coloring project.
Heather & Jessica doing a felt coloring project.

Several have asked what my daughter Heather is doing here.  She has been such a big help and does so good just with being with Jessica and doing things.  Being Jessica is not hooked up anything, she can take her for walks. There is a game room and they played WII and have done some crafts.  She has helped fix her hair and they go on the computer together.  The hospital provides computers for the kids right in their beds.

A neat thing happen today that again showed God’s divine planning.  When Jessica had to be taken emergently for the surgery, another child had to be bumped.  It was just a matter of minutes before surgery was to be starting on this child.  Today while Jessica was in the game area, a man walked in with a Cornerstone University hoodie on.  I mentioned to him that my husband and I met there and we have friends who work/teach there.  He graduated in the mid-80’s and is now the golf coach there.  His last name is Eric Campbell.  I asked him why he was there and he said he has a three month old baby that had surgery on Monday.  He was suppose to have the surgery on Friday, but had to be bumped because of an emergency.  I told him that child was my daughter, and here she was sitting up ALIVE and I told him I had thought & prayed several times for the family that had to be bumped because I am sure it was so hard when you’re all prepared for it.  He was very excited to meet us and Jessica said  and was thrilled to see who took his child’s place., and hopes to have his wife who was with the baby come meet me.  Eric’s baby had surgery on Monday and he told me he’s doing well.  Isn’t God amazing?

Jessica with gifts she been blessed with from friends & the hospital.    THANK YOU!
Jessica with gifts she been blessed with from friends & the hospital. THANK YOU!

So for my Cornerstone & WCSG friends, please be praying for the Campbell family and their baby’s recovery.

Well, Jessica is settling down for the night as Heather is doing all our laundry and we hope to get to sleep soon.  I am thankful I was able to get a nap this afternoon (and started to dose off  on the bed by Jessica as she was getting her echo done today!).

Thank you for your continued prayers for Jessica and our family.